Relating to Sienna and the Sinny-Size Series
You may have seen the blog post 6 Secrets Special Needs Moms Know being shared on social media. I love this post. I wanted to add a couple things, though. Here are More Secrets Special Needs Moms Know: 7. Special needs moms don’t sweat the small stuff. Chances are, you won’t hear us complain […]Continue Reading... 2 Comments.
This message brings an unusual, but extremely important request. Brad, one of Sienna’s friend’s, needs a kidney. Brad and his sister, Bridgette, both have Primordial Dwarfism. The Jordan’s have faced every adversity with a sense of humor and a strong faith. Now the need for a kidney for Brad is urgent. They […]Continue Reading... No Comments.
Sienna has been working really hard on navigating through various social protocols and expectations by working with us at home and with a Life Skills Coach. Sienna has begun to feel more comfortable about embracing her teen years and feeling more prepared for adulthood. One of the goals Sienna set for herself was to cook dinner for her […]Continue Reading... No Comments.
“ThinkBIG” is how Sienna and I autograph each of the children’s books we sign. You may think you know what it means, but I have a different twist on it. I recently explained this when I was able to speak at Speaker’s Night at the Little People of America Conference in San Diego this year. […]Continue Reading... 4 Comments.
Update on “Is There Something Wrong with Me, Mom?” Last Thursday I posted about Sienna’s experience of rejection at The Little People of America National Conference. I had no idea that post would get as much attention as it did. It was viewed over 3500 times! The number of people that reached out with […]Continue Reading... No Comments.
It sure does suck to watch your 15-year-old cry and ask “Is there something wrong with me?” because she doesn’t even feel like she fits in at the Little People Conference. I posted that on my FB on Monday night and I wanted to expand on it. I want to spread the word. I want […]Continue Reading... 76 Comments.
I’ve seen several blog posts from parents of Little People who talk about how sad or devastated they were when their child was diagnosed with Dwarfism. I just don’t relate to that. It’s not that I’m saying they shouldn’t feel the way they fell; I’m saying that I have a very different take on it. […]Continue Reading... 8 Comments.
As this “regular” school year comes to a close, I sit back and look at our last school year. This was our first full school year of homeschooling. Here’s what I’ve learned: Sienna wasn’t heading in the right direction while she was in public school. While I’ve loved many of Sienna’s past teachers, Sienna’s education was […]Continue Reading... 2 Comments.
There were a few times over the last few weeks or so when Sienna asked some questions about comments people made in response to the 20/20 segment and the local news segment that aired recently. One of the comments was that she couldn’t possibly be a dwarf because she was “too tall,” let alone be a […]Continue Reading... No Comments.
Each year, the last day of February is recognized as Rare Disease/Disorder Day. And while Sienna has been featured in the media for her rare “disorder” Primordial Dwarfism, little is discussed about her other rare diagnosis Dandy Walker. So, I wanted to take advantage of the day by raising a little awareness for it. Not […]Continue Reading... No Comments.